ALS Association

The ALS Association Upstate New York Chapter offers the following programs and services free-of-charge to persons with ALS, PLS and PMA and reside within our 48-county service area including Buffalo and Western New York: local and national resource information and referral services, home visits, grant programs (to include caregiver respite and patient assistance), education and awareness support groups, books and DVDs for loan on related-topics of interest, and an equipment loan program to include speech generating devices.

At the ALS Association, we have made it our responsibility to educate, spread awareness, serve the ALS community and one day find a cure. Our three main mission priorities are patient care, advocacy and research. We are committed to doing whatever it takes to ensure that people with ALS have access to effective treatments, that cases of ALS are being prevented, and that by 2030, ALS is a livable disease.

In Upstate NY, the ALS Association is dedicated to ensuring that people with ALS have access to high quality ALS specific clinical care regardless of where they live in Buffalo, Western New York and all across New York State. Our care services programs are designed to empower people to engage with the world in the way that they want and reduce the physical, emotional, and financial burden of living with ALS. These programs include care management, support groups, durable medical equipment loans, and respite and quality of life grants for approximately 400 people with ALS living in the 48 Upstate New York counties.

Locally, in Buffalo, we have two staff members who serve our organization, a support group for local families and a durable medical equipment loan closet that serves patients and families in the Buffalo area.